Abstract Sa1201: Emergence of an Online Support Community for Cardiac Arrest Survivors, Co-Survivors, Lay Rescuers, and Advocates

Circulation, Volume 150, Issue Suppl_1, Page ASa1201-ASa1201, November 12, 2024. Background:Cardiac arrest survivors often experience physical, cognitive, emotional, and social challenges that can linger for years. Co-survivors and lay rescuers can also experience distress. In January 2023, the Sudden Cardiac Arrest Foundation (SCAF) launched the Cardiac Arrest Survivor Alliance™ (CASA), an online community to support these individuals. CASA offers evidence-based information about common challenges post survival, easy connection with peers, access to experts, and pathways to further clinical support.Methods:We built CASA using Mighty Networks (MN) and assembled a leadership team that includes clinicians, researchers, and survivors with expertise in survivorship. We recruited members through SCAF’s existing Survivor Network and outreach via SCAF’s website, newsletters, and social media. Additional recruitment resulted from articles about CASA in multiple national news outlets, Internet searches, conference presentations, partner collaboration, and member invitations. We obtained analytic reports through MN to evaluate CASA’s growth and engagement during the past 12 months.Results:By early June 2024, there were 1,435 members primarily from the U.S. (92%), plus members from 26 other countries. This compares with 868 members from the U.S. and 21 other countries in June 2023. Approximately 65% of members are survivors. Other members include co-survivors (22%), advocates, lay rescuers, and bereaved. During the 12-month period, there were: 10,058 contributions (sum of actions taken by hosts, moderators, and members including posts, “cheers,” comments, chat messages, direct [private] messages [DMs], and RSVPs); 923 active members (total members who visited); 468 unique members providing contributions.Members have not only engaged publicly, but also privately; 189 members (21%) have sent 1,448 DMs, exceeding MN’s benchmark of 15%. Attendance at monthly webinars has ranged from 22 to 47 participants. Further, we have established a formal research protocol and are working with several researchers seeking to improve understanding of survivorship and develop resources to support survivorship.Conclusion:CASA has grown substantially during the past 12 months and there is a high level of engagement. Goals include providing additional evidence-based content, outreach to hospitals and targeted healthcare providers nationwide including in rural areas, and further collaboration with program partners.

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Novembre 2024

Abstract Su1107: Online educational film depiction of opioid overdose causing cardiac arrest

Circulation, Volume 150, Issue Suppl_1, Page ASu1107-ASu1107, November 12, 2024. Introduction:Opioid overdose (OD) is a growing cause of cardiac arrest in the US, spurred by the rise of illegally manufactured fentanyl and analogs. Naloxone is a reversal agent that can be administered by bystanders. Intra-nasal (IN) naloxone is now widely available in pharmacies across the US. Despite increasing access, minority populations remain disproportionately affected by drug overdose deaths. There are many free online opioid OD educational videos. Digital media can be a powerful tool for mass education, but the effectiveness is unknown.Research Question and Aims:The goal of this study was to evaluate online opioid overdose videos for content and gender/racial representation.Methods:We performed an online search with the query “how to give Narcan” (popular term for IN naloxone). Results were limited to the first 52 Google, 50 YouTube, and 60 TikTok videos. Exclusion criteria included: animal victim, duplicate, or no mention of naloxone. For each video, 2 reviewers evaluated content and identified the race and gender of featured characters. Disagreements were resolved through consensus. The race and gender of featured characters was compared using a two proportion z-test. Inter-rater reliability (IRR) for each data point was calculated using the arithmetic mean of Cohen’s kappa.Results:Of 121 videos, the majority (87.6%) mentioned naloxone as a treatment for opioid OD; 62.8% provided instruction on how to administer IN naloxone, and 4.1% featured a testimonial. Only 43.0% provided a realistic visual demonstration of IN naloxone administration; 25.6% showed a realistic re-enactment of opioid overdose, and even fewer (19.0%) showed the dramatic response to naloxone. IRR was high for all categories.Videos predominantly featured white compared to non-white-appearing characters in both the victim (75.5 v. 17.8%, p< 0.00001) and rescuer roles (72.5 v 21.6%, p

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Novembre 2024

Online training to improve evidence-based leadership competencies among nurse leaders in China: a feasibility randomised controlled trial

Objective
To evaluate the feasibility of an online evidence-based leadership training programme for nurse leaders and its potential effectiveness in improving nurse leaders’ evidence-based leadership competencies.

Design
This is a two-arm, parallel, feasibility randomised controlled trial.

Methods
We screened all 160 nurse leaders from two Chinese hospitals. Eligible participants who gave their informed consent were randomly assigned to either an evidence-based leadership training group or a conventional online training group at each site and received a 7-month intervention. Pre-test and post-test assessments gauged feasibility and potential effectiveness. Descriptive and inferential statistics were employed for data analysis.

Results
Of the 160 screened participants, 119 (74%) were assigned to the intervention group (n=59, 50%) or active control group (n=60, 50%). In the intervention group, the number of participant logins in the modules ranged from 21 (36%) to 58 (98%), while in the control group, it ranged from 20 (33%) to 57 (95%). Participants in the intervention group (n=59) completed 42% of the 531 assigned tasks, while the control group (n=60) completed 41% of their 540 assigned tasks. Regarding course task adherence, participants in the intervention group returned 3.8 (SD=3.2) tasks (out of 9 tasks), while the control group returned 3.7 (SD=3.5) tasks (out of 9 tasks). A total of 22 (18%) out of 119 participants dropped out of the study, with 9 (15%) out of 59 from the intervention group and 13 (22%) out of 60 from the control group.

Conclusions
While the intervention demonstrated a degree of feasibility, measures can still be taken to improve intervention acceptability, course adherence and course task adherence. A full and powered randomised controlled trial is needed to test the intervention’s effectiveness and to ensure the feasibility of the study in clinical settings.

Trail registration number
ClinicalTrials.gov, numbers NCT05244499.

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Novembre 2024

Primary headache content on online community platforms: a scoping review protocol

Introduction
As the usage of online platforms becomes increasingly prevalent to share information, it is essential to garner a better understanding of the content disseminated across the internet. Studies have found that patients are relying on online resources to gather medical information, potentially encountering misinformation. The sharing of information concerning primary headaches, despite affecting a large portion of the world’s population, has not been comprehensively analysed through the lens of online content. This scoping review seeks to explore the extent of available information, uncover existing gaps in knowledge, and to serve as a resource for healthcare providers to educate themselves to provide informed care to patients.

Methods and analysis
Studies considered for inclusion are those focused on primary headache (including migraines, tension headaches and cluster headaches) content posted on a community platform. Any online community forum will be eligible, including but not limited to TikTok, Twitter, Facebook, YouTube, Instagram, online forums and blogs. Studies will be limited to those published in English, with no geographic restriction. Five electronic databases, namely PubMed, Cochrane Library, Scopus, EMBASE, PsycInfo, will be searched for published reports. Two reviewers will independently screen titles and abstracts. The reviewers will then assess the full texts selected. In both cases, disagreements will be discussed with a third reviewer and consensus will be achieved. Data analysis will be descriptive with a narrative summary.

Ethics and dissemination
Since this is a scoping review of previously published summary data, ethical approval for this study is not needed. Findings will be published in a peer-reviewed journal.

Trial Registration Number
This protocol is registered on the Open Science Framework Repository (https://doi.org/10.17605/OSF.IO/2MAFN).

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Novembre 2024

Healthy Eating and Active Lifestyles for Diabetes (HEAL-D) Online: a mixed methods evaluation exploring the feasibility of implementing a virtual culturally tailored diabetes self-management programme for African and Caribbean communities

Objectives
To assess the feasibility and acceptability of delivering Healthy Eating and Active Lifestyles for Diabetes (HEAL-D) Online.

Intervention
HEAL-D Online—a 7-week culturally tailored type 2 diabetes educational programme delivered using online platform.

Setting
Programme delivered by a London NHS trust, with patients referred from primary care healthcare professionals via a central booking system.

Participants
53 HEAL-D service users completed a postcourse questionnaire, and 14 service users and 7 service delivery staff participated in interviews.

Design
Mixed methods service evaluation.

Primary and secondary outcomes
Service user engagement, acceptability and perceived patient benefit assessed using service activity data. Feasibility and acceptability of HEAL-D Online, using semi-structured interviews to explore the views and experiences of service users and service delivery staff.

Results
Service activity data showed that initial uptake of HEAL-D Online was good (62% attendance) with a high adherence to the programme (77% completion). A high fidelity (94%) was observed, and qualitative findings showed that staff and service users were satisfied with all aspects of course delivery. Both service activity and qualitative data indicated that attendees felt more confident in controlling their diet and managing their diabetes post-HEAL-D Online.

Conclusion
This evaluation demonstrates the feasibility of delivering HEAL-D using an online platform, with its ability to achieve similar goals compared with its face-to-face counterpart. Challenges were identified around the identification, recruitment and referral of eligible patients into the programme, which need to be addressed for successful implementation on a wider scale.

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Ottobre 2024